{"id":5290,"date":"2025-07-15T20:13:05","date_gmt":"2025-07-15T23:13:05","guid":{"rendered":"https:\/\/mbinitiative.org\/?page_id=5290"},"modified":"2025-09-03T15:39:15","modified_gmt":"2025-09-03T18:39:15","slug":"qa-about-mbi","status":"publish","type":"page","link":"https:\/\/mbinitiative.org\/pt\/qa-about-mbi\/","title":{"rendered":"Perguntas e Respostas sobre a MBI"},"content":{"rendered":"
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The
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Perguntas e Respostas sobre a MBI<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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1. O que \u00e9 a Medulloblastoma Initiative (MBI)?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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The MBI is an international non profit initiative founded by Fernando Goldsztein after his son was diagnosed with medulloblastoma – the most common malignant brain tumor in children.<\/p>

Inconformado com os tratamentos ultrapassados e t\u00f3xicos ainda utilizados hoje, Fernando decidiu agir. Nascida no Brasil, a MBI tem como miss\u00e3o acelerar a ci\u00eancia e salvar vidas, financiando pesquisas colaborativas e de ponta que buscam tratamentos mais eficazes e menos agressivos para essa doen\u00e7a devastadora.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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2. Por que o meduloblastoma precisa de aten\u00e7\u00e3o urgente?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Apesar de ser o c\u00e2ncer cerebral pedi\u00e1trico mais comum, o meduloblastoma segue sendo fortemente subfinanciado e pouco pesquisado. Crian\u00e7as ainda s\u00e3o tratadas com protocolos desenvolvidos h\u00e1 d\u00e9cadas, o que frequentemente gera consequ\u00eancias cognitivas, f\u00edsicas e emocionais duradouras.\u00a0<\/span><\/p>

Ainda pior, para as crian\u00e7as que recaem, muitas vezes n\u00e3o h\u00e1 op\u00e7\u00f5es de tratamento vi\u00e1veis. A urg\u00eancia \u00e9 real: estamos correndo contra o tempo para levar esperan\u00e7a \u00e0s fam\u00edlias que atualmente ouvem as palavras \u2018n\u00e3o h\u00e1 mais nada que possamos fazer\u2019.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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3. O que a MBI j\u00e1 conquistou at\u00e9 agora?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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  • Arrecadou US$ 10,5 milh\u00f5es em menos de quatro anos.<\/span><\/li>
  • Criou uma rede global de pesquisa com 16 laborat\u00f3rios l\u00edderes nos EUA, Canad\u00e1 e Alemanha.<\/span><\/li>
  • Obteve aprova\u00e7\u00e3o do FDA para dois ensaios cl\u00ednicos em tempo recorde \u2014 incluindo um com tecnologia inovadora de mRNA.<\/span><\/li>
  • Estabeleceu uma plataforma colaborativa que une os principais cientistas do mundo contra o meduloblastoma.<\/span><\/li>
  • Formou uma equipe exclusiva dentro da Children\u2019s National Hospital Foundation para promover conscientiza\u00e7\u00e3o e arrecada\u00e7\u00e3o nos EUA.
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    4. Por que o modelo da MBI \u00e9 diferente \u2014 e mais eficaz?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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    A MBI rompe com o modelo tradicional de financiamento fragmentado, descoordenado e lento. Em vez disso, adota uma estrutura integrada e \u00e1gil:<\/p>

    • Sem silos. Sem retrabalho. Todas as descobertas s\u00e3o compartilhadas abertamente.<\/span><\/li>
    • 100% dos recursos v\u00e3o para pesquisa. N\u00e3o h\u00e1 custos administrativos.<\/span><\/li>
    • Cada laborat\u00f3rio tem um papel bem definido, contribuindo para uma estrat\u00e9gia unificada.<\/span><\/li><\/ul>


      Sabemos que a ci\u00eancia exige rigor e n\u00e3o pode pular etapas \u2014 mas \u00e9 poss\u00edvel (e necess\u00e1rio) cortar burocracias que atrasam o progresso. A urg\u00eancia \u00e9 real.\u00a0<\/span><\/p>

      Diferente de muitas iniciativas criadas em mem\u00f3ria de algu\u00e9m que se foi, a MBI nasceu para salvar uma crian\u00e7a ainda em tratamento \u2014 e milhares de outras que enfrentam a mesma batalha. N\u00e3o podemos esperar.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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      5. Por que doar para a MBI \u00e9 diferente de doar para outras causas?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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      A MBI n\u00e3o apenas financia pesquisa \u2014 ela transforma a forma como a pesquisa \u00e9 feita. Nossa abordagem j\u00e1 recebeu reconhecimento de vozes respeitadas na medicina:<\/span><\/p>

      • A MBI foi destacada em um artigo do Massachusetts Institute of Technology (MIT) como modelo pioneiro em financiamento biom\u00e9dico.<\/span><\/li>
      • Dr. Clifford Hudis, CEO da American Society of Clinical Oncology (ASCO), afirmou que a MBI pode ajudar a moldar o futuro da pesquisa em outras doen\u00e7as negligenciadas.<\/span><\/span><\/li><\/ul>
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        Seu apoio n\u00e3o apenas ajuda a curar o meduloblastoma \u2014 ele ajuda a estabelecer um novo padr\u00e3o global para o enfrentamento do c\u00e2ncer pedi\u00e1trico. <\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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        6. O que a MBI faz com as doa\u00e7\u00f5es?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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        Cada doa\u00e7\u00e3o feita \u00e0 MBI gera progresso real e salva vidas. Todos os recursos s\u00e3o direcionados diretamente para o financiamento da pesquisa.

        <\/span>Os custos operacionais s\u00e3o m\u00ednimos e cobertos pelo fundador da MBI.

        <\/span>Garantimos total transpar\u00eancia, atualiza\u00e7\u00f5es regulares e a certeza de que cada centavo vai para a ci\u00eancia \u2014 sem descontos administrativos.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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        7. Como posso contribuir ou me envolver?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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        Al\u00e9m do apoio financeiro, existem muitas formas eficazes de ajudar a MBI a avan\u00e7ar:<\/span><\/p>

        • Apresente-nos a potenciais doadores, empresas ou funda\u00e7\u00f5es alinhadas com nossa miss\u00e3o.<\/span><\/li>
        • Ofere\u00e7a acesso \u00e0 m\u00eddia ou conecte-nos com vozes influentes para ampliar nossa mensagem.<\/span><\/li>
        • Apoie a\u00e7\u00f5es de advocacy que possam influenciar pol\u00edticas de sa\u00fade e financiamento de pesquisas.<\/span><\/li>
        • Conecte-nos com eventos relacionados \u00e0 sa\u00fade infantil, pesquisa oncol\u00f3gica ou impacto social, onde possamos apresentar a iniciativa.<\/span><\/li>
        • Organize ou participe de pequenos encontros privados (petit comit\u00e9s) com aliados estrat\u00e9gicos.<\/span><\/li>
        • Siga-nos nas redes sociais e compartilhe nossa miss\u00e3o com sua rede.<\/span><\/li><\/ul>


          Cada a\u00e7\u00e3o, conex\u00e3o e conversa pode ajudar a salvar vidas.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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          The Medulloblastoma Initiative Q&A about MBI 1. What is the Medulloblastoma Initiative (MBI)? The MBI is an international non profit initiative founded by Fernando Goldsztein after his son was diagnosed with medulloblastoma – the most common malignant brain tumor in children. Shocked by the outdated and toxic treatments still used today, Fernando decided to act. […]<\/p>\n","protected":false},"author":11,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-5290","page","type-page","status-publish","hentry"],"yoast_head":"\nQ&A about MBI - The Medulloblastoma Initiative<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/mbinitiative.org\/pt\/qa-about-mbi\/\" \/>\n<meta property=\"og:locale\" content=\"pt_BR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Q&A about MBI - The Medulloblastoma Initiative\" \/>\n<meta property=\"og:description\" content=\"The Medulloblastoma Initiative Q&A about MBI 1. What is the Medulloblastoma Initiative (MBI)? The MBI is an international non profit initiative founded by Fernando Goldsztein after his son was diagnosed with medulloblastoma – the most common malignant brain tumor in children. Shocked by the outdated and toxic treatments still used today, Fernando decided to act. 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