{"id":2747,"date":"2024-10-08T15:51:23","date_gmt":"2024-10-08T18:51:23","guid":{"rendered":"https:\/\/mbinitiative.org\/?page_id=2747"},"modified":"2025-01-22T11:38:49","modified_gmt":"2025-01-22T14:38:49","slug":"amor-incondicional-e-a-busca-pela-cura-do-cancer","status":"publish","type":"page","link":"https:\/\/mbinitiative.org\/pt\/unconditional-love-and-the-search-for-a-cure-for-cancer-2\/","title":{"rendered":"Um amor incondicional e a busca pela cura do cancer"},"content":{"rendered":"
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Um amor incondicional e a busca pela cura do cancer<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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Por Karina Pastore<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Neofeed – 06\/10\/2024<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Depois da not\u00edcia de que seu filho tinha c\u00e2ncer, o empres\u00e1rio ga\u00facho Fernando Goldsztein criou um modelo inovador de pesquisa e, em tempo recorde, conseguiu a aprova\u00e7\u00e3o do governo americano para o in\u00edcio de dois ensaios cl\u00ednicos.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Fernando n\u00e3o diz \u201cse\u201d achar a cura para o c\u00e2ncer de Frederico e, sim, \u201cquando\u201d<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u201cN\u00e3o, voc\u00ea n\u00e3o imagina.\u201d<\/strong><\/p>

Assim, o empres\u00e1rio ga\u00facho Fernando Goldsztein reage sempre que algu\u00e9m, at\u00e9 em um gesto de solidariedade, diz imaginar como ele se sente em rela\u00e7\u00e3o ao c\u00e2ncer do filho. \u201cN\u00e3o \u00e9 uma resposta muito simp\u00e1tica\u201d, reconhece, em conversa com o NeoFeed. Mas ele tem raz\u00e3o. Essa dor e essa ang\u00fastia s\u00e3o inimagin\u00e1veis. S\u00f3 as conhece quem as vive \u2013 ou viveu.<\/p>

Fernando, por\u00e9m, nunca se deixou abater. Fez do medo de perder Frederico a\u00e7\u00e3o. Em 2021, ele fundou a Meduloblastoma Initiative (MBI), uma organiza\u00e7\u00e3o internacional de apoio \u00e0s pesquisas daquele que \u00e9 um dos tumores cerebrais mais comuns na inf\u00e2ncia. \u201cS\u00f3 vou parar quando a cura for encontrada\u201d, avisa.<\/p>

A determina\u00e7\u00e3o paterna vai al\u00e9m da esperan\u00e7a. Em menos de 30 meses, a MBI conseguiu o aval da FDA, a rigorosa ag\u00eancia regulat\u00f3ria americana, para a realiza\u00e7\u00e3o de dois ensaios cl\u00ednicos focados em abordagens in\u00e9ditas para o tratamento da recidiva do meduloblastoma \u2013 os primeiros do g\u00eanero em seres humanos.<\/p>

Com a aprova\u00e7\u00e3o em tempo recorde, os testes devem come\u00e7ar nas pr\u00f3ximas semanas. Um deles \u00e9 uma imunoterapia: as c\u00e9lulas de defesa dos paciente s\u00e3o \u201cprogramadas\u201d para atacar as c\u00e9lulas cancerosas, enquanto um medicamento desativa as prote\u00e7\u00f5es qu\u00edmicas do tumor.<\/p>

A outra linha de pesquisa investiga a cria\u00e7\u00e3o de uma vacina capaz de fortalecer o sistema imunol\u00f3gico dos doentes contra o reaparecimento do meduloblastoma.<\/p>

Em um ano e meio, Fernando espera a aprova\u00e7\u00e3o de mais tr\u00eas ensaios cl\u00ednicos.<\/p>

Ao custo de cerca de US$ 1 milh\u00e3o, cada um, cabe \u00e0 MBI o financiamento das pesquisas. E isso s\u00f3 \u00e9 poss\u00edvel gra\u00e7as a uma intensa campanha de arrecada\u00e7\u00e3o de fundos, deflagrada por Fernando, no lan\u00e7amento do iniciativa.<\/p>

O primeiro aporte, de US$ 3 milh\u00f5es, veio da fam\u00edlia Goldsztein. Desde ent\u00e3o, a organiza\u00e7\u00e3o j\u00e1 levantou US$ 10,3 milh\u00f5es. And counting\u2026<\/p>

Entre os cerca de 50 doadores est\u00e3o, por exemplo, a Joseph Safra Foundation; e os empres\u00e1rios Ant\u00f4nio Luiz Seabra, fundador da Natura; Carlos Jereissati, do grupo Iguatemi; e Nelson Sirotsky, presidente da Maromar Investimentos e publisher do grupo RBS.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Sinergia e rapidez<\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Sob a lideran\u00e7a do americano Roger Packer, do National Children\u2019s Hospital, em Washington, m\u00e9dico de Frederico e um dos maiores especialistas do mundo em meduloblastoma, a MBI compreende um cons\u00f3rcio de 14 institui\u00e7\u00f5es de pesquisa \u2013 11 nos Estados Unidos, duas no Canad\u00e1 e uma na Alemanha. Em breve, uma 15a deve entrar no grupo, um centro de estudos de Israel.<\/p>

\u201cOs pesquisadores trabalham de forma sin\u00e9rgica, sem duplicidade de a\u00e7\u00e3o. N\u00e3o existem silos, eles v\u00e3o trocando informa\u00e7\u00f5es online\u201d, explica Fernando. \u201cCada institui\u00e7\u00e3o fazendo a sua parte no quebra-cabe\u00e7a.\u201d<\/p>

Recentemente, por exemplo, uma pesquisadora canadense conseguiu desenvolver algumas c\u00e9lulas tumorais em laborat\u00f3rio. Imediatamente amostras foram enviadas para os demais estudiosos. Essa coopera\u00e7\u00e3o tem se revelado imprescind\u00edvel para a celeridade dos estudos.<\/p>

Com 25 mil novos casos por ano, apesar de ser um dos tumores cerebrais mais comum entre as crian\u00e7as, estatisticamente, o meduloblastoma \u00e9 considerado raro. Por isso, n\u00e3o \u00e9 uma prioridade para quem investe em pesquisa.<\/p>

Para se ter ideia, o tratamento padr\u00e3o foi estabelecido na d\u00e9cada de 1980. Os pacientes s\u00e3o submetidos a uma cirurgia para a remo\u00e7\u00e3o do tumor e, em seguida, passam por sess\u00f5es pesadas de radio e quimioterapia. Muitas crian\u00e7as levam para o resto de suas vidas sequelas dos procedimentos \u2013 como comprometimento cognitivo, perda da audi\u00e7\u00e3o, problemas de mem\u00f3ria e infertilidade, entre outros. E, pior: em um ter\u00e7o dos casos, a doen\u00e7a recidiva.<\/p>

Foi assim com Frederico. Os primeiros sintomas surgiram em 2015, quando o menino tinha 9 anos. Nas imagens de uma resson\u00e2ncia magn\u00e9tica, encontraram a causa para as dores de cabe\u00e7a, os v\u00f4mitos e a vis\u00e3o dupla. Em 7 de setembro, veio a confirma\u00e7\u00e3o do diagn\u00f3stico. O pior dia da vida de Fernando e B\u00e1rbara.<\/p>

Frederico foi operado em Porto Alegre e enfrentou o duro tratamento p\u00f3s-cir\u00fargico. Em 2016, a fam\u00edlia se mudou para os Estados Unidos e o menino come\u00e7ou a ser acompanhado pelo doutor Packer. De volta ao Brasil, no entanto, tr\u00eas anos depois, o c\u00e2ncer voltou. N\u00e3o havia mais nada a fazer, disseram aos pais do garoto.<\/p>

Ningu\u00e9m esmoreceu. A fam\u00edlia voltou aos Estados Unidos. L\u00e1, Frederico participou de dois ensaios cl\u00ednicos, com terapias experimentais. Nessa \u00e9poca, Fernando teve a ideia da MBI.<\/p>

Mais tr\u00eas anos, em 2022, outra recidiva e uma nova opera\u00e7\u00e3o. Hoje, Frederico tem 18 anos e n\u00e3o tem a doen\u00e7a. \u201cMas, se o c\u00e2ncer voltar, quero que meu filho tenha tratamento assim como tamb\u00e9m todas as crian\u00e7as que est\u00e3o na mesma situa\u00e7\u00e3o mundo afora\u201d, diz o pai.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u201cMundos inteiros\u201d<\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Fernando vem da constru\u00e7\u00e3o civil. Em 2010, a empresa da fam\u00edlia, a Goldsztein Participa\u00e7\u00f5es, foi comprada pela Cyrela \u2013 de cujo conselho de administra\u00e7\u00e3o ele faz parte desde ent\u00e3o. A partir daquele 7 de setembro, no entanto, o foco do empres\u00e1rio passou a ser a luta contra o meduloblastoma.Ele virou uma esp\u00e9cie de porta-voz de, pelo menos, 50 fam\u00edlias ao redor do mundo \u2013 Brasil, Estados Unidos, Europa, Israel e Ir\u00e3, por enquanto\u2026. O modelo inovador de pesquisas m\u00e9dicas da MBI come\u00e7a a ser replicado, inclusive, em outras \u00e1reas da oncologia.<\/p>

O empres\u00e1rio foi convidado a integrar o conselho da funda\u00e7\u00e3o do National Children\u2019s Hospital \u2013 \u201cSou o \u00fanico n\u00e3o americano\u201d, conta. Em abril, ele e Packer tiveram a oportunidade de falar sobre os objetivos da causa em um evento na embaixada brasileira em Washington.No m\u00eas anterior, tamb\u00e9m na capital americana, a hist\u00f3ria do projeto foi apresentada ao Conselho Permanente da Organiza\u00e7\u00e3o dos Estados Americanos (OEA). O empres\u00e1rio, ele pr\u00f3prio, foi v\u00edtima de um tumor \u00f3sseo, diagnosticado no in\u00edcio dos anos 2000.<\/p>

\u201cObviamente, a not\u00edcia de que voc\u00ea tem c\u00e2ncer \u00e9 sempre dura, mas nada, nada se compara \u00e0 descoberta de que seu filho tem c\u00e2ncer\u201d, lembra. \u201cO c\u00e2ncer deveria ser proibido em crian\u00e7as.\u201d<\/p>

O v\u00eddeo de apresenta\u00e7\u00e3o da MBI se encerra com uma frase do Tamuld, o livro sagrado dos judeus: \u201cQuem salva uma vida salva o mundo inteiro\u201d. \u00c9 esse o prop\u00f3sito de Fernando. O pai de Frederico quer salvar muitos \u201cmundos inteiros\u201d.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Leia a mat\u00e9ria original em: NEOFEED<\/a><\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t<\/i>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\tVOLTAR<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"

Unconditional love and the search for a cure for cancer By Karina Pastore Neofeed – 06\/10\/2024 After learning that his son had cancer, Rio Grande do Sul businessman Fernando Goldsztein created an innovative research model and, in record time, obtained approval from the American government to begin two clinical trials. Fernando doesn’t say “if” he […]<\/p>\n","protected":false},"author":4,"featured_media":3157,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-2747","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"\nLove in the Search for a Cancer Cure | The Medulloblastoma Initiative<\/title>\n<meta name=\"description\" content=\"Discover how unconditional love inspires the search for a cure for childhood cancer, transforming lives with The Medulloblastoma Initiative.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/mbinitiative.org\/pt\/amor-incondicional-e-a-busca-pela-cura-do-cancer\/\" \/>\n<meta property=\"og:locale\" content=\"pt_BR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Love in the Search for a Cancer Cure | 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