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Brazilian businessman’s initiative creates a chance of cure for a rare type of cancer
The most important business and economics newspaper in Brazil, Valor Econômico, highlights how science, data, and international collaboration can shorten pathways, accelerate diagnoses, and create real impact for patients, especially in critical areas such as rare diseases

The Medulloblastoma Initiative Fast Tracks Research To Help Kids with Cancer
Brazilian businessman Fernando Goldzstein’s quest for his son’s brain cancer cure Sparked a Global Movement to reduce the diagnostic odyssey toward rare disease diagnoses. In the rare disease realm, the term “diagnostic odyssey” refers to the long,

Dad Is in Race Against Time to Save Teen Son and Thousands of Other Kids with Same Rare Brain Tumor
People Magazine, one of the most prestigious international magazines, highlighted the story of the Medulloblastoma Initiative (MBI). The article shows how a personal experience gave rise to a global initiative dedicated to shortening the diagnostic odyssey and