STORIES

The most important business and economics newspaper in Brazil, Valor Econômico, highlights how science, data, and international collaboration can shorten pathways, accelerate diagnoses, and create real impact for patients, especially in critical areas such as rare diseases

Brazilian businessman Fernando Goldzstein’s quest for his son’s brain cancer cure Sparked a Global Movement to reduce the diagnostic odyssey toward rare disease diagnoses. In the rare disease realm, the term “diagnostic odyssey” refers to the long,

People Magazine, one of the most prestigious international magazines, highlighted the story of the Medulloblastoma Initiative (MBI). The article shows how a personal experience gave rise to a global initiative dedicated to shortening the diagnostic odyssey and